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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Aruba: Eagle Beach and Beyond

During our second week in Aruba, our home base has been a lovely but economical Airbnb that is much larger than our first one. It’s a true one bedroom apartment with full kitchen and is about a fifteen minute walk to the beach. It’s also a five minute walk to Super Foods, the best supermarket on the island.

We have been taking advantage by preparing breakfasts and dinners in the apartment: The local eggs are amazing with deep orange yolks: For local fish, we have prepared grouper, red snapper and amber jack. I cook, and Julia does dishes. No complaints here.

Most mornings and evenings, we take long walks from Eagle Beach to Palm Beach—about a five mile round trip. Mornings heat up fast into the mid eighties with fairly high humidity. Evenings are delicious with cooling breezes and beautiful sunsets.



One day, we took the bus to the north tip of the island. Walking on the east side, we experienced more of the “Wild Coast” with big waves and rocky shores.




This is our favorite rooftop bar to hide from the heat and enjoy generous happy hours.


We are winding down our trip. I will do a final wrap-up after we have returned to the frozen tundra.


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