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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Long Travel Day

We started at 4 a.m. with snow steadily falling. Our first destination was Chicago O’hare Airport.  Driving conditions were not ideal with temperatures staying right at the freezing mark. Precipitation moved from snow to rain to freezing rain.


Long lines through security and getting singled out for a full pat down search added to my stress levels. As it turned out, our flight was delayed anyway so we had plenty of time. The five hour flight was smooth and relaxing. I finished “Neon Rain”, a James Lee Burke novel about a New Orleans cop. There are a bunch in the series, and I will be reading more. It’s gritty, challenging and fun.

We landed in Aruba with sunny skies and 83 degrees. Our Airbnb is small and modest, but we don’t plan on spending much time in the room. Tonight we ate at Pincho’s, the restaurant on the pier in the photo below. Julia had tasty grouper, and I had six huge grilled shrimp. Tonight we’re winding down with a five year old bottle of Cuban sipping rum, which we purchased at the duty free store. Life is good.


Aruba is just 17 miles off the coast of Venezuela and is technically part of South America. It has Dutch origins, but the population seems to be a true melting pot.

Comments

greg said…
So, are you missing the snow yet?

I spent some time in Caracas in the 80's - 90's. Such great weather!
Brewed Journey said…
It’s hard not to like highs of 83 and lows of 79. The sun is intense or “very hard”, as our host told us. The evening ocean breezes are wonderful.
MFH said…
I can't BELIEVE how inconSIDERATE some people are!!!!

You've been there TWO whole days and no photos!!!

WHAT can you possibly be doing?!!!

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