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The Cruise--Details

I didn't include more details in the prior "The Cruise" post for two reasons. 1)  I didn't think anyone would be interested; and 2)  This trip didn't include much of the normal topics:  good beer, good coffee or John-style travel. But there are details, which may be useful to some people contemplating how such a trip is put together. On the first day of the trip, we drove three hours to pick up my mother in Cedar Rapids, Iowa.  At 85, she isn't comfortable driving for long distances and hadn't flown for many years. We then drove 3 1/2 more hours to Chicago, where we checked into the Wyndham, where you can get a room that includes the cost of parking for up to 12 days.   We were up early on the hotel shuttle to O'Hare, where we then boarded the a non-stop American Airlines flight to New Orleans. Here, we checked into a Hampton Inn near the port.  My mother was pretty tired, so Julia and I went out for a Cajun dinner and live music.   Rememberi...
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April Update

 

It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.  

Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain.

It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We don't know how much time is left, but we are glad to have time to say the things that need saying.  

The only travel that I will be doing in the foreseeable future is to visit my Mom and Dad in Iowa, where my father is in hospice.  He has his own journey.  Due to strokes, both his body and mind have betrayed him.  But he is over 90 years old and lived a full life.  He is a tough ex-Marine and will not go silently into the night.  

I will update again when something changes.  For now, it's daily visits to  Justin's hospital.  Julia and I alternate most days to give each other breaks.  Justin and I pass the time reliving our common experiences and watching shows on tv together.  He expects me to read his lips.  I expect him to use his voice app.  Yeah, we still clash a bit.  Sometimes he gets back at me by forcing me to watch women's soccer.  It's all good--at least as good as it can be under the circumstances. 


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MFH said…
John and Julia,

It's been nearly three weeks since you posted this. I often wait to comment as it takes me awhile to absorb. Now, even after this long, I still cannot read this without starting to cry.

I puzzle over my reaction as I'm aware that hundreds of thousands die each day....are dying each minute. Though we only know each other through our correspondence, it has affected me deeply.

I cannot imagine how this must be for all of you. I try and relate through my own experience wherein, over the past four years, I thought every day could be my last. But l can't imagine losing a child.

I haven't forgotten Allie. I wonder how she's doing? Somehow, the loss of my sister and brother didn't feel as sad as watching my daughter drive away the last time I saw her.

My heart goes out to you.

May 5, 2024 at 8:35 PM
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