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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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 I’ve been stuck in this campground for eight nights now, and we’re feeling a little claustrophobic. The good beer is all gone, and most of the cheap beer is too.

Callie: “Not Miller High-Life?”

I called the auto service desk this morning when it opened, and they were eventually able to confirm that my part arrived at the Nissan dealer twenty miles away. Their driver has to go get the part, and then the service department has to work it into the schedule for replacement of the broken shift assembly. With good luck, I won’t need to pursue contingency plans for an alternative way to move the trailer by Thursday when my campsite is reserved for someone else. I’ll update this post when I learn more.



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Bill said…
Clearly desperate times when you have to resort to cheap beer. What a saga.
August 28, 2023 at 10:22 AM
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