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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Late Summer Update

 


The highlight of the last few weeks was winning the local pickleball tournament.  Yeah, it's been a little slow in the travel and hiking department. 

Not that we haven't traveled.  Last week, we drove a couple of hours to the Appleton area to attend the funeral of Julia's stepfather, Bob.  Both of her parents have passed, and there is just one stepmother left.  Bob lived a very full life and to the age of 93, passing quietly in his own home surrounded by family.  You can't ask much more than that.   

We also had some Justin-related travel, which resulted in securing an apartment close to Justin's doctors and the hospital in Madison.  With one step forward, we immediately took a step back when the state balked at Justin's agency's care giving plan.  At this point, we are putting our faith in the agency's experience in getting similar plans eventually approved.  Otherwise, we make be starting from scratch again in that department.  We shall see.

Hiking has been limited to daily training hikes for the Inca Trail, which is coming up later this fall.  We are getting the miles in, but we will not be able to replicate the altitude.  



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greg said…
I hope all sorts itself out with Justin.

I also wish I lived at about 6000 feet so those pesky altitude issues would go away!
September 6, 2022 at 2:25 PM
MFH said…
Congratulations on winning the tournament! Kristen plays three times a week and with that and swimming each day she stays in shape. She's 72.
September 6, 2022 at 10:01 PM
John said…
Thanks, Greg. It will sort itself out one way or another. When it seems too good to be true, it usually is.

That elevation is going to kick our butts. We will have several days to acclimate in Cusco before the hike, which should help.
September 7, 2022 at 6:39 AM
John said…
Thanks. Julia and I both enjoy playing. It's a game that the young or old can play to stay in shape. Until recently, the men's world champ was Zane Navratil, a 26 year old from UW-Whitewater. When we play in Poynette during the winter, there is a 76 year old retired doctor who plays with us.
September 7, 2022 at 6:46 AM
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