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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Blog’s Pause (Paws) Button


Earlier this week, I celebrated my 58th birthday.  Justin and I slept in until Julia and Allie drove back on the day after  their cross-country ski race in Michigan’s Upper Peninsula.  Allie finished second in her age group, and Julia was tenth in her age group.  I’m sworn to secrecy regarding the number of people in their age groups, but Allie came home with a big medal.

Upon arriving  home, Julia made her best cake ever: a  three layer chocolate and peanut butter birthday cake.


We ate a birthday dinner of meat and potato pasties, purchased from a bakery in Iron Mountain, Michigan.

We are in the final stretch for getting Justin’s caregivers in place, doctors’ appointments, durable medical equipment updates, and adult children back to school.  In the event that everything works out, confirmation will be evidenced by no blog posts for a few weeks.  I’m hoping that my next post will detail new travels, instead of  an explanation for why things didn’t work out.  There are a lot of moving pieces at this point.

Callie is in charge of the blog while I’m off-line.



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