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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Lexington, Ky


May 30th to June 1:

We were in Lexington for our niece Anna’s high school graduation. She will be attending Brown University.

I am not a gregarious, social person, and this was a large (wife’s side) family event lasting several days. I won’t spend a lot of time discussing the graduation, except to say that we are all proud of Anna. She is a very intelligent young woman with a bright future.


On the day after graduation, my brother-in-law Scott suggested a trip to West Sixth Street Brewing, which Scott describes as one of his favorite places in the world. It was an excellent suggestion.

I had a Lowbeam New England IPA, while Scott enjoyed the Meadow Berliner Weiss. Then we ambled next door to Smithtown Seafood. I had the catfish & grits. He had the shrimp & grits. Dessert was a cocoa porter for me and a heffeweisse for Scott.


This concludes the southern portion of the road trip. We are headed north.


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