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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Nashville Raindrops


May 28-29

Our stay at the Music City Embassy Suites was outstanding: views of the city from the 8th floor, walking distance to many attractions, and great wheelchair accessibility. However, the weather did not cooperate.



There were a few breaks in the rain, and we took full advantage. On Monday, we walked about 30 minutes to the honkeytonk bars that line the streets for about three solid blocks.

At the first bar, we stood at the door and looked in to see if there was room for our motley crew. The singer on stage called us out to come in to a nearby open table. The country music and the beer was good. Although the band didn’t know any Townes Van Zandt, they did fulfill my request with an old Johnny Cash tune from the Folsom Prison album.


Monday night, Julia and I walked over to the Parthenon replica at a park near Vanderbilt University.


On Tuesday, we all walked downtown to view the state capitol and other state government buildings.


After all of that hard work, Justin was ready for a hot dog, and we were ready for a beer. The Nashville farmers market provided the perfect respite from the rain.


I was drinking a Bearded Iris Homestyle IPA, which might be the best IPA that I have had this year.

The rain continued that afternoon and evening, although we did sneak out for some Ben and Jerry’s ice cream between showers.

Next up: Lexington, Kentucky.
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