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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Plans and Research


I will be sticking around south-central Wisconsin for the next six weeks. There is much to do with the process to get my son ready for independent living and college, along with a high school graduation party to plan.  In the meantime, I also have some planning, preparation and modifications on my Scamp trailer–the Brew Hut.  I won’t have time for much Scamping this summer, due to other travel plans, but I do have plans for an extended fall trip.

Modifications under consideration are upgrading the battery, replacing the carpet with vinyl plank flooring, upgrading the mattress, changing out the dinette table, deciding whether or not  to get a  generator and/or an inverter,  and a few other things.

We had another six inches plus of snow today.  Last year, we had a few days in the 70’s by this time of year.  What started out as a fairly mild winter has seemed to go on forever.  The wood stove is warming my old bones tonight,  but  I’m ready for a little “screened porch time” and warmer weather. The weatherman promises changes soon for the better.


Tonight, I made Moroccan slow cooker chicken for the family.  Julia celebrated the continuation of winter with a glass of Castle Rock Pinot Noir, while I sipped on a Deschutes Black Butte Porter.


 
 Justin is pretending not to mind all of the vegetables on his plate.


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