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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Driftless Area

Much of southwestern Wisconsin is known as the driftless area:  where the glaciers never covered the land in ice.  It's characterized by steep bluffs and deep river valleys. The Kickapoo River runs through here.  

Kickapoo is an Algonquin name for "one who goes there, then here."  Sixty miles as the bird flies from its source to its mouth, the Kickapoo zig zags 126 miles.  The Kickapoo watershed is nearly half a million acres. 

Recently, Julia and I set off for Wildcat Mountain State Park between the small towns of Hillsboro and Ontario.  We elected to ignore Google Map's fastest route in favor of county highways and town roads that took us through Amish country and beautiful scenery.  



On a weekday, we were the only vehicle in the state park's parking lot.  Trail conditions required some caution with snow and ice on the north-facing slopes and mud on the south-facing slopes. The views on top of Wildcat Mountain (a Wisconsin hill/bluff) and the brisk wind made us feel alive. 






Callie is catching drops from the melting icicles.

After finishing up our hike on the Old Settlers Trail, we drove to the Hillsboro Brewing Company for pizza and beer. 



The pizza was good, inexpensive and was big enough for leftovers on a second day.  As I was sipping my "Joe Beer", a no-nonsense porter with no added flavoring, I spied an interesting sign over by the cashier.
 
 


Of course, I had to ask.  Apparently, the new canning equipment wasn't filling all of the cans full of beer.  Some had as little as six ounces in a can, while others nearly 10 or 11 ounces.  The shorted cans couldn't be sold with the regular labels.  Hmmm, at $12/case, we were pretty excited to bring home a case of "no label" stout.




Comments

MFH said…
SCORE!

How's the new truck?
John said…
The malfunctions were eventually diagnosed as a bad starter. After replacement, it’s been starting and running perfectly. A little discouraging that a starter fails with less than 40k miles, but that’s the way the cookie crumbles. Justin, Allie and Scott (Julia’s brother) are all here today for roast beast and cherry pie (sour cherries from our tree). Justin has been breathing easier by using the ventilator. Happy holidays!
MFH said…
Huuurrray! (for truck.)

Hurrraay for Justin!

A wonderful day!


Thanks! To you too.
MFH said…
As an stout & porter enthusiast and an appreciator of a deal, I'm wondering if that case of no-label was, in fact, a "steal?"
MFH said…
Also, how's Justin doing?
John said…
If I am honest, the stout wasn’t the best due to an added peanut butter and jelly flavoring component, which wasn’t terrible but was distracting. The Joe’s Porter was much better.

One of the reasons that I haven’t posted recently is that a non-breathing Justin had to be resuscitated in the ambulance on the way to the hospital about ten days ago. He’s stabilized in ICU and fighting to get strong enough to remove the breathing and feeding tube. He isn’t there yet. All of our travel plans for next month are obviously on hold. The diagnosis was a collapsed lung, pneumonia and Covid. He’s alert and constantly texting but isn’t able to speak or eat due to the tubes.
MFH said…
Good lord!

Please tell him I'm keepin' everything I can crossed for a quick recovery.

Beer deal doesn't sound as if it was *too* bad.
John said…
The plan is to remove the vent on Monday. It will be two weeks since the first intubation, and they think the risk is too high to leave it in longer. He needs to get strong enough to go 24/7 with his bipap machine support. Otherwise, a surgeon will need to do a permanent tracheotomy for a vent. We aren't quite certain what to hope for. The trach provides better respiratory support but has its own risks. He's only 23 but understands what's at stake. He wants to live either way but wants the chance to breath on his own. The doctor says he's earned that.

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