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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Scamping Again on the Mississippi River

We’ve been spending a few days on the banks of the Mississippi—about an hour north of LaCrosse, Wisconsin. 


Most of the time, I think of rivers as a single water pathway, but the Mississippi River doesn’t limit itself in that way. Much of the wild country is in the algae-covered back channels and bays—much too shallow for the grain barges and yachts that move through the system of locks.  Julia is exploring in her inflatable kayak, while Callie and I stick to firmer ground.

View through the trees behind the Scamp

It’s all good, except for the mosquitoes and no-see-ums. 


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MFH said…
How does Julia like her kayak? What brand is it? How much does it weigh?
August 16, 2022 at 1:40 PM
MFH said…
This might be of interest....

https://www.bugshirt.com/

In anticipation of visiting Canada I ordered pants & shirt & am very pleased with the quality.
August 16, 2022 at 1:47 PM
Brewed Journey said…
Julia acquired her old Stearns inflatable kayak from her Dad after he died. It rides low, she says, but the price was right (free). It weighs under 40 lbs inflated, and she brings it along in the back of the truck whenever the opportunity arises. I’m surprised it hasn’t sprung a leak as often as she has used it. So, yeah, she likes it, and it’s a nice remembrance of her father.
August 16, 2022 at 2:09 PM
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