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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Road to New Mexico: Long Driving Day

 From February 2022

The plan was to take three days to get to New Mexico from Cameron, Missouri.  After all, we weren't in any hurry, and our first Airbnb reservations weren't until February 3rd.  

We hit the road at 6 a.m. on February 1st, hoping to avoid rush hour around Kansas City.  That strategy worked pretty well. Traffic was heavy, but no slow-downs.  Listening to the morning news on the car radio, the weather forecast did not sound good.  A winter storm was approaching and was going to hit the Great Plains that evening.  Spending the next couple of days slogging through wintry conditions in Kansas, the Oklahoma panhandle, and Texas just didn't sound fun.

Early in the day, we started considering other options.  Julia first tried to see if we could get into our Airbnb in Albuquerque early.  No go.  Then she tried Santa Fe.  There was a possibility at a small, adobe casita, but it required a two day minimum and was just a studio. Could we make it to Santa Fe before the storm hit?   Julia booked it.  

I settled into driving, listening to an audio book that Julia downloaded.




During the early afternoon, we heard back from the owner of the Airbnb.   There was a problem getting our small casita ready, due to staffing and the winter storm coming.  Would we mind an upgrade at no extra charge to the larger family adobe casita, which had a fireplace and access to a hot tub?   Yeah, that would work.

We pulled into Trader Joe's in Santa Fe after dark and picked up groceries for a few days.  Our Airbnb was actually a few miles north of Pojoaque, and it was starting to snow.  The gravel driveway going steeply up from the main road was snow covered but still easily passable with the Subaru's AWD. 

It had been a really long day.  But two days after leaving Wisconsin, we were in New Mexico already, relaxing and enjoying ourselves.  Firewood was stacked in the covered porch.   A bottle of wine was opened. Sleep wasn't far away.


Comments

Anonymous said…
Julia finds some nice places.

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