Google Tag Manager icon Quieter September than Expected Skip to main content

Featured

Mississippi River: End of Scamp Season

From October 2021 We started and ended our 2021 camping system on the Mississippi River.   We had one last brewpub to visit:  608 Brewing, named after the area code.  In most parts of the country, you would never see children in a bar.  Wisconsin isn't like most parts of the country. There were actually many kids running around in both the outside space and the inside space. The beer was pricey here, but I have to admit the hazy IPA would have my nomination for beer of the year.   With the Scamp put away, we stayed close to home until December.  The blog will pick up from there. 
Post a Comment
Read more

Quieter September than Expected

From September 2021

After returning from the Upper Peninsula in August, I spent a quiet September close to home.  Julia went to San Francisco to visit Allie for a couple of weeks.  They traveled down to the central California coast and had a great time.  I stayed at home because Justin's caregiving situation at college was falling apart.  We anticipated Justin moving back home.

However, Justin showed independence by unexpectedly refusing to come home from college, even when it appeared that he did not have adequate caregiver coverage. Somehow, he made it work and took it a step further by deciding to come home less often.  This new development has continued to the present.

The two caregivers that Justin employs are very responsible and have been with him for awhile now.  They are both much closer to his age than us and  also apparently less judgey and nagging. Justin's college career is  on the slow track (one course per semester), but dormitory living offers  a chance to live his own adult life in a highly accessible, single dorm room with automated doors, lights and devices.  He also has a great internet and cable tv package, which is important to him.  Most people live in a dorm room to go to college.  Justin goes to college to live in a dorm room.

It took awhile for us to come to terms with this.  Financially, this can work as long as Justin gets good enough grades to stay in school.  We set money aside for Allie and Justin's college tuition.  Justin is going to take a lot longer to go through his.  He easily qualifies for full SSI, which pays for his dorm room.

We continue to talk by phone most days, but Justin prefers that our visits be on campus.

In fact, tomorrow is Justin's 22nd birthday.  With Duchenne Muscular Dystrophy, every birthday at this point is a milestone.  Justin requested a Japanese steakhouse dinner, so we will jump to the present tomorrow or the next day with a photo or two from his birthday celebration.

Hiking last week with Justin on the campus nature trail


 



 







Comments

Post a Comment

Popular Posts