Not much has been happening around here for the last couple of weeks to blog about.
We had a quiet New Year's. Well, mostly quiet.
Julia and Allie got some cross country skiing in.
Justin had neuromuscular day at UW Hospital. Twice per year, he gets seen by just about every specialist that you can imagine. The thing about Duchenne's muscular dystrophy is that there are never huge changes---just small changes that add up to big ones over time. At the hospital, they tweak his medications, update his bipap settings, prod, poke and measure.
There are usually follow-up visits. Justin's lungs are weakening, and they will have him stay overnight next week to get some more measurements. He uses the bipap for night time breathing assistance. Many of the young men with Justin's diagnosis use an oxygen sipping tube during the day. They will be deciding whether he needs that at this point.
Before he can stay overnight at the hospital, Justin needs another Covid test. We will be doing that tomorrow. The sleep study will happen next week--before he moves back into the dorms on the weekend.
Assuming that Justin is successfully launched at school and the caregivers are all showing up per the schedule, Julia and I will probably head somewhere in February. I don't even want to start planning until we see where everything is later in the month.