Google Tag Manager icon Treading Water Skip to main content

Featured

The Cruise--Details

I didn't include more details in the prior "The Cruise" post for two reasons. 1)  I didn't think anyone would be interested; and 2)  This trip didn't include much of the normal topics:  good beer, good coffee or John-style travel. But there are details, which may be useful to some people contemplating how such a trip is put together. On the first day of the trip, we drove three hours to pick up my mother in Cedar Rapids, Iowa.  At 85, she isn't comfortable driving for long distances and hadn't flown for many years. We then drove 3 1/2 more hours to Chicago, where we checked into the Wyndham, where you can get a room that includes the cost of parking for up to 12 days.   We were up early on the hotel shuttle to O'Hare, where we then boarded the a non-stop American Airlines flight to New Orleans. Here, we checked into a Hampton Inn near the port.  My mother was pretty tired, so Julia and I went out for a Cajun dinner and live music.   Rememberi...
3 comments
Read more

Treading Water

Not much has been happening around here for the last couple of weeks to blog about.  

We had a quiet New Year's.  Well, mostly quiet.


Julia and Allie got some cross country skiing in.



Justin had neuromuscular day at UW Hospital. Twice per year, he gets seen by just about every specialist that you can imagine.  The thing about Duchenne's  muscular dystrophy is that there are never huge changes---just small changes that add up to big ones over time.  At the hospital, they tweak his medications, update his bipap settings, prod, poke and measure.  

 

There are usually follow-up visits.  Justin's lungs are weakening, and they will have him stay overnight next week to get some more measurements.  He uses the bipap for night time breathing assistance.  Many of the young men with Justin's diagnosis use an oxygen sipping tube during the day.  They will be deciding whether he needs that at this point.  

Before he can stay overnight at the hospital, Justin needs another Covid test.   We will be doing that tomorrow. The sleep study will happen next week--before he moves back into the dorms on the weekend.   

Assuming that Justin is successfully launched at school and the caregivers are all showing up per the schedule, Julia and I will probably head somewhere in February.  I don't even want to start planning until we see where everything is later in the month. 

Comments

greg said…
Don't you mean shoveling snow instead of treading water?

My nephew is over there at the Vintage World Champion Snowmobile Derby. This morning, with no prior warning, I got to watch him crash on the Derby's Facebook feed. Yeah, I can think of better ways to start my day - - - (he's OK and back out on the track but with a wife and young daughter now, not to mention a farm to run, you'd think he might give these shenanigans up!)
January 9, 2021 at 9:51 AM
John said…
Glad that your nephew is going to be all right. That must have been scary to watch on Facebook.

Snowmobile racing is one of those adrenaline sports that is dangerous but apparently really fun. Crashing brings us all back down to earth. On a much different scale, I get that adrenaline rush when I'm thumbing down on my ATV throttle a bit heavier than I should on my long driveway. Speaking of which, my driveway is over 100 yards long so I don't shovel much snow. I have a plow on the atv for snow removal, and a heavy duty multi-stage snowblower for when the drifts get too high to plow. I take it nice and snow with the plow down on the asphalt. Our region of Wisconsin hasn't had much snow so far this winter, but it's a lot more of winter left. That derby is in Eagle River about three or four hours north of me.
January 9, 2021 at 10:15 AM
MFH said…
GOOD LORD!! LOOK AT THOSE CRAZED WOMEN!! There's no telling WHAT goes on there!!
January 11, 2021 at 10:43 PM
Post a Comment

Popular Posts