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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Outer Banks, North Carolina


Hurricane Dorian took its best shot at the Outer Banks.  However, the area was recovering well by the time we arrived at our campsite on the Cape Hatteras National Seashore. Julia and I have been enjoying some quality time together:  eating, drinking, and taking lots of long walks on the beach.




Actually, Julia is training for an upcoming mini-triathlon with running, biking, and paddlling, so she is doing a bit of running on the beach each morning.  The highlight of the eating and drinking has been a local place called Fish Head’s, which offers lots of quality craft beer and 20 cent boiled shrimp.  The beach and surf views from the tables are free.

We’ve eaten redfish, flounder, triggerfish, plankfish, and red snapper.  The latter two we picked up at local seafood markets and prepared on our cast iron skillet.  We start every morning with a long walk on the beach and end every day the same way.





Life is good, and we are thankful.


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