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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Historic Edenton, North Carolina


When we went to hitch up the Brew Hut on the morning of our departure, we learned that the Outer Banks wasn’t quite done with us yet.  One of the Brew Hut’s tires was markedly low (20 psi).

I got the “opportunity” to try out my low tech bicycle pump to re-inflate the tire.  After about  20 sweaty minutes, I was able to get it back up to 50 psi.  In the meantime, Julia found a tire repair place in Manteo that promised to fit us in.  I have nothing but good things to say about Tread Quarters Discount Tire.  They found the screw (in the header photo) causing the problem, patched it, and got us back on the road in about an hour for under $30.   We were fortunate not to have a blowout on the rod and to be within driving distance to get the slow leak resolved.

We drove on to a nondescript RV park near Edenton.  There was a nice view of a pond from our campsite, electric to plug into on a hot day, and a serviceable shower.  The main reason for our detour to Edenton was history.  This is the site of the Edenton Tea Party, where the 51 American women defied King George’s Tea Tax in 1774.


My wife Julia loves women who stir things up so this was a must stop for us.




There she is by the famous tea pot sculpture, Next she is lurking in the shadows of 1767 Courthouse.  Finally, she poses for her rabble-rousing punishment.  I am there to take pictures and perform the final rescue.


We only spent one night in the area, but it was a worthwhile stop.    Our next destination is Medoc Mountain State Park.
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