Google Tag Manager icon Some Good Days Skip to main content

Featured

April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
Post a Comment
Read more
Labels

Some Good Days



We’ve had splendid summer weather during the past week:  sunny days in the 70’s and overnight around 50.  Justin is home for a couple of weeks. He seems to be doing much better now.  He earned A’s in both of his summer courses, did his homework on time and kept to a good sleeping schedule.  In fact, he seems like a whole new person.


We had a nice family campfire on the hill last night.  Allie’s magic Iphone camera filters turned Justin into a hipster.  Justin starts his second year of college after Labor Day. I think he has a better understanding of the demands of college and taking a more active role in managing his disability.

Allie finished her summer internship, along with an interview for a three year corporate rotation. She will help me out caregiving for Justin for the next week and then return to Milwaukee for her last semester of college before graduating in December.  We’ve had time to do some hiking also.


Next week is full of checking off “to do” lists before taking off in the Brew Hut the following week.  I know that Callie is ready to go.  Me too.



Labels:

Comments

Post a Comment

Popular Posts