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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Magnolia, Minnesota


I’m not going to lie.  Last night was rough.  I picked up Allie at O’Hare in Chicago at about 11p.m., dropped her off in Milwaukee, and arrived home at about 2 a.m. She was sick and understandably upset about saying goodbye to her boyfriend for who knows how long after having the time of her life in the Greek Isles. Once home, I slept for maybe four hours, off and on.

Then, with the help of a full French press pot of fresh-roasted Brazilian coffee, I began making my way west.  I was originally going to stay off of the interstate, taking Hwy 60 and then Hwy 18 across northern Iowa.  However, there was extensive flooding along that route, so I opted for Interstate 90, boring but not flooded.  By afternoon, I was making frequent bathroom stops to balance out all of the coffee consumed and was singing loudly to myself with the windows open to stay awake.

We arrived at the Magnolia City Campground at about 4 p.m. It’s a typical Midwestern small town with no services except for this nice campground less than a mile from the interstate with full hookups for $10/night. A café offers breakfast but closes at 2 p.m.  There’s a campground sign that says no discounts are offered  because the rates are already so cheap. I can’t disagree: electricity, water, showers, dump station, good Internet coverage from T-mobile, and a bunch of free digital tv stations.

Unfortunately, there’s no grocery store or even a convenience store.  I haven’t really stocked my fridge, so it’s a cold beer and scrambled eggs and cheese for dinner.  The good news is that I’m ahead of schedule and hopeful that I’ll be in the Badlands tomorrow night.

Elvis is very excited about this trip. Or maybe he’s just ready for supper.


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