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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

The Big City–Canadian Style


Our final stop of the wheelchair van road trip was Toronto.  Julia arranged for us to stay at the Grand Hotel in a two bedroom suite.  We were walking/power chair distance to everything. Service was outstanding.  The free breakfast was really, really good. The staff gave us a special service dog gift box that included a travel water dish, chew toys, and poop bags.  They did everything they possibly could for us within their power.  The suite did not end up being accessible at all, but we knew that going in.  We couldn’t find any accessible hotel rooms downtown for our party of three.

On our first day, Julia took Justin to the Hockey Hall of Fame, while I walked the streets of downtown and then stopped at a basement bar for a Guinness and fish tacos. After we met up, we went to the Craft Beer Market where I enjoyed an IPA, and Justin ate Fast Food Sushi (Cheeseburger and fries wrapped in bacon and presented sushi style served with jalapeño cream cheese and BBQ sauce).  Maybe it was the two beers, but I really liked this sculpture in the downtown area.





Later, after getting settled in the hotel, Julia and I ventured out to the St. Lawrence Market where we picked out cheeses, sausage, fruit and freshly baked crusty bread, bringing our groceries back to the room for dinner.  We did that both nights to save money over an expensive restaurant.  Additionally, the neighborhood around the very nice hotel was a little sketchy at night.  As might be expected, we saw great wealth and style in Toronto, but we also saw a lot of homeless people down on their luck and some in need of mental health services. Many of these folks were staying at shelters close to the Grand Hotel, while others slept in nearby parks.  We didn’t have any problems, but it was eye-opening for Justin.

On Day 2, we walked down to the Toronto Harbor and then over to the CN Tower.  Julia, Justin and Elvis stood in line and went up to the top.





I went off in search of….a brewery, which was just across the street so I didn’t have to go far.




Steam Whistle has one style of beer:  a pilsner.  While a dry, crisp, light pilsner is not my favorite style of beer to drink or brew, I have great admiration for a brewery that executes its style perfectly.  In any event, it was a great way to pass the time while the rest of the crew went up and down the tower.

Next, we walked over to Chinatown for a late dim sum lunch.  With dim sum, waiters continuously bring out trays of Chinese small plates.  You pick and choose which dishes you want to buy and eat.  I think the total bill was $25 Canadian, and we all felt full and tried some very interesting foods. We had pot stickers, noodles, fried shrimp, shrimp dumplings.  We turned down the chicken feet and beef tripe, but we couldn’t resist the octopus.


That night, Julia and I enjoyed the rooftop jacuzzi, while Justin and Elvis watched the Blue Jays baseball game.  We got up early the next morning and drove all the way back home. It was a long drive, but we were all out of hotel reservations. We were all ready to sleep in our own beds at home after a long road trip.


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