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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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“Well, I’ve been afraid of changin’
‘Cause I’ve built my life around you
But time makes you bolder
Even children get older
And I’m getting older, too.”  (Fleetwood Mac-“Landslide”)
 
 
Yesterday, my son graduated from high school.  For many reasons, education for Justin has been a battle.  He overcame many physical and social obstacles.
 

 
Today, we spent a couple of hours at his new school and home:  University of Wisconsin-Whitewater.  He plans to major in social work and will start a summer transitions program in July.  There are still unknowns and obstacles ahead, but we will take those day-by-day.
 
For now, we can sit back and celebrate his victories.
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