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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Kohler-Andrae State Park: A Short Trip to Wisconsin’s East Coast


Earlier this summer, my son was scheduled to take part in a Disability Leadership retreat at a local college for a five-day stay.   Someone new to his personal care was going to help Justin during the week, so we were hesitant to leave on our own adventure until a successful overnight had passed.  I spent Sunday afternoon getting the Brew Hut ready for travel for what we hoped would be our first extended trip. 

Day One:  After not hearing from Justin and assuming that all was well, we hitched up the Brew Hut and were on the road by 8 a.m.  We drove by way of Columbus, Fond du Lac and Sheboygan, arriving at Kohler-Andrae State Park at 11 a.m.  We didn’t have reservations. Our backup plan was to try other Lake Michigan shoreline campgrounds within an hour or so.  Because it was Monday morning and most of the weekend campers had left, we had no problem securing a site with electric hookups.

I last visited the beach at Kohler-Andrae about thirty years ago.  At that time, I remembered the beach being wider and the dunes being barer, but my recollection may be flawed or perhaps influenced by beer.  I think my last visit was during college and after dark.  I probably didn’t do much hiking, but that’s what we do now.



The third photo is the way that I remember the dunes, but a helpful, informative sign explains that human and animal activity causes erosion that leaves the sandy scar.  When I was a kid, we loved to run and jump off the dunes without giving much thought to the consequences of our fun.   On this trip, I did not try to relive my youth, break an ankle or scar the dunes.

Informational signs warned against straying off the boardwalk trail but also provided knowledge:


That evening, we drove into Sheboygan and had a fantastic meal at Harry’s Prohibition Bistro on South Pier Street.

The appetizer special was mussels pan seared and finished in a reduced red wine sauce with lots of garlic.  Often, ordering seafood in Wisconsin is a mistake.  Not this time.  The chef stopped by to see if we were enjoying the dish, saying that he was going to make some up for himself before leaving for the evening.  The main dish, pizza, was very good but we probably could have stopped after the mussels.


After dinner, we meandered up and down the Sheboygan pier.  It was a gorgeous night.




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