April Update
It's been awhile since I've posted. Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son. In truth, he is getting sicker and weaker. For awhile,he made great progress, talking, eating, and getting back into his power wheelchair. Then he started getting weaker. His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7). After that, he just hasn't been able to get over the hump. This week, Justin decided to discontinue the weaning from the ventilator. He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops. Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality. We will continue this journey with Justin to the end to the best of our abilities. We
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When I'm home I spend a bit of pretty much every day "camping" in The Van, unfortunately camping in his pop-up out by his barn is not part of my nephew's ordinary day, but that's his life for the next 14 days - - -
On the other hand, it's been disappointing to see the attitude of EVERY PERSON FOR THEMSELF rather than setting up distribution centers for paper products and reminding everyone to practice safe-sex (There's PLENTY of TIME!)
How're Allie & Justin?
Glad to hear Julia's Dad is back at home.
Allie and Justin are both healthy and will probably be living with us for months to come. Justin's college classes are online for the rest of the semester. Allie is working full time as Justin's caregiver and pitches in on our firewood harvesting project on the hill. Her marketing job search has pretty much dried up; the only offer that she's received turned out to be taking temperatures for $18/hour, but she turned that down for a number of reasons. It was supposed to be for a marketing position. They asked what she would be willing to do. She said anything. When they said take temperatures, she said, well, almost anything but not that.