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April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We
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Summer has moved to October

After about a week of lighting up my fireplace insert to keep warm in the house, summer came back with 80 degree temperatures over the weekend.  

Justin is all moved into his apartment.  In fact, he is so moved in that he almost never leaves.  Justin has a very narrow temperature range of comfort.  Above 80, and he's too hot.  Below 65, and he's too cold.  So when he called me up and asked me to take him to the Madison Farmer's Market today, I was glad to oblige.  

Justin lives only a couple of miles from the state capitol where the market takes place.  So he rolled out the front door, and I got some additional steps in after my early morning walk with Callie. Justin's chair is rated for 8 miles without a charge, but the battery is reaching the end of its life so we kept an eye on the battery.  Before we finished, we picked up some buffalo beef jerky for Justin and a big bag of Thai chili peppers for me.  

Justin wanted to watch the Wisconsin Purdue game in his apartment, so we parted ways.  I went over to the patio of Working Draft Beer Company and sipped on "Dad Bod" Stout, which Bill from Nebraska would have loved.  A simple oatmeal stout with chocolate malt (dark roasted barley).  Simple, full-bodied, flavorful and not too much alcohol.


 

Julia has been visiting our daughter Allie in California.  She should be returning home on Tuesday.  I better get the house cleaned up.

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greg said…
When I'm away The Wife is addiment that I give her at least 6 hours notification of when I will return. She claims it's because she doesn't want to be startled when I walk in. I suspect the real reason is that she needs that time to put our tiny home back together.

We have different styles. I like things put away where I know right where to find them. She - well not so much. She can't stand to see a flate surface and must cover it up with stuff. Doesn't matter what kind of stuff just as long as it's covered!

Great to hear that Justin is living his own life!
October 23, 2022 at 9:51 AM
John said…
Yeah, I probably am on your wife's end of the spectrum. I know where things are, but my flat surfaces do tend to get covered up with things used often when she's not around. The problem is that Julia will "put them away" where I can't find them, so I need to be a step ahead of her.

Having Justin only 30 minutes away and with complete care giving coverage will let us both focus on having a more normal father/adult son relationship, which is a positive change. This week, he wants me to take him to early voting.
October 24, 2022 at 8:16 AM
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