Google Tag Manager icon Justin's Shower and the Zoo Skip to main content

Featured

April Update

  It's been awhile since I've posted.  Justin's situation is hard to write about, but I know there are people who want to know what's going on with Justin, my son.  In truth, he is getting sicker and weaker.  For awhile,he made great progress, talking, eating, and getting back into his power wheelchair.   Then he started getting weaker.  His left lung became covered with secretions, and he needed surgery to scrape things out. Then a CT scan revealed more new spine fractures (total of 7).  After that, he just hasn't been able to get over the hump.  This week, Justin decided to discontinue the weaning from the ventilator.  He is on full breath support and can no longer use the voice valve to talk without dangerous oxygen drops.  Pain medication has been significantly increased to help him deal with the pain. It's a tough thing for a 23-year-old to confront one's mortality.  We will continue this journey with Justin to the end to the best of our abilities.  We

Justin's Shower and the Zoo

 Now that Julia is back home, we have been working to get Justin's apartment shower to be accessible.  There is a lip of four inches outside of the shower and a drop of about three inches into the shower.  The space in front of the shower is tight and faces his laundry closet.  

We bought a curb ramp to address the outside lip. It's a short and steep up for a shower chair moving sideways.  For the inside, we are trying out a perforated rubber mat on the bottom, paving stones on top of the rubber mat, and then another rubber mat on top.  This still leaves a way for the water to drain.  

His staff has been doing sponge baths for over a month, but the house manager isn't happy about that as a long term plan.  Justin is fine with the sponge baths and isn't thrilled about the potential bumpy ride in and out of the shower.  Even when he had a walk-in shower in the dorms, he was only showering once per week to supplement sponge baths.

Sunday morning, we will try it out and see if the plan (and Justin) works. We will go slow.  We practiced with the empty shower chair, but adding 180 lbs to the shower chair will be a significant change. 

We dragged Justin out of his apartment yesterday and walked over to the nearby Madison zoo with one of his caregivers.  Justin never wants to leave but is usually happy when he finally gets outside.  Yesterday was a nice sunny day in the 60's, and he didn't get too cold (Justin never wears long pants or shoes--even in the middle of winter).

We then ordered a Wisconsin fish fry for carry-out, and then watched some of the Milwaukee Bucks' basketball game at Justin's apartment.  Watching tv sports and playing video games is how Justin currently spends most of his time.  

I have to say that he has been doing a better job of managing his personal finances.  He successfully negotiated  receiving both energy and internet subsidies for low income folks.  Justin also has an appointment next week with Wisconsin Department of Vocational Rehabilitation to see about part time job options.  And he figured out a way to get an absentee ballot for his new address and voted!




Comments

MFH said…
Woo-hoo!!! Way to go, everybody!

We get by with a little help from our friends.

Popular Posts